Other Organizations:

Albany Medical Center offers top treatment options and community resources for patients and families living with hemophilia and von Willebrand's disease.

Hemophilia Federation of America 

The HFA serves as a consumer advocate for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, and availability of the products the individuals of this community require.

The NHF provides information pertaining to bleeding disorders (including hemophilia, von Willebrand Disease, Factor VII, and Factor XI deficiencies), legislative advocacy, research (gene therapy), conferences, etc. Including Steps for Living and Victory For Women.

January 01, 2020

World  Federation of Hemophilia 

An international organization dedicated to individuals with hemophilia worldwide.

The Coalition's focus is on improving the future for individuals with hemophilia B (Factor IX deficiency) through research, development of products, advocacy, and therapeutic treatment.

Canadian Hemophilia Society

The Canadian Hemophilia Society addresses the symptoms, diagnosis, and treatment of bleeding disorders including hemophilia, von Willebrand Disease, and other coagulation deficiencies including platelet function disorders. Excellent diagram depicting normal clot formation.

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OTHER RESOURCES:

  • The Canadian Hemophilia Society addresses the symptoms, diagnosis, and treatment of bleeding disorders including hemophilia, von Willebrand Disease, and other coagulation deficiencies including platelet function disorders. Excellent diagram depicting normal clot formation.

  • National Library of Medicine - Latest information from medical journals available free through the MEDLINE service of the National Library of Medicine, a part of the National Institutes of Health (NIH). 

  • Creutzfeldt-Jakob Disease Foundation, Inc. - Website provides overview of CJD, the nature of the CJD agent, listing of CJD-related conferences/symposiums and current needs of the research community as well as a collection of CJD-related websites. 

  • Haemophilia-forum - Website dedicated to supplying information about haemophilia to medical and health care professionals, providing an excellent opportunity to interact with world wide specialists in the field of haematology. 

  • Healthopedia - Healthopedia.com, a medical and health consumer information resource containing comprehensive and unbiased information in patient-friendly language from trusted sources on over 1,500 health topics, 70 focussed health centers, and more than 11,000 drugs and medications. 

  • Hemophilia Treatment Centers - Provides a search of Hemophilia Treatment Centers across the country.

  • Free Medline  

  • Free PDR Searches

  • Royal Hemophilia Pedigree

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