Mission Statement
Section 1.
The organization is dedicated to volunteer service of persons with hemophilia, von Willebrand disease (vWD) and other genetic bleeding disorders. The organization provides services and referrals to members of the community and encourages them to advocate for their own health care. Furthermore, the organization supports research and programs that will improve the quality of life for persons afflicted with genetic bleeding disorders and their associated complications.
Section 2.
To achieve the aforementioned, the organization is committed to:
Providing encouragement and assistance in the treatment and medical care of affected persons.
Assisting consumers and their family by providing programs regarding:
Peer-led education, outreach and support targeting consumers (patients), parents of affected children and the general public;
Advocacy and personal development; and Recreation.
Fundraising in support of organizational objectives.
Supporting research efforts.
Section 3.
The organization shall establish and maintain cooperative working relationships with all participants of the bleeding disorders health care model including, but not limited to, consumers and their families, health care providers and professionals, industry, advocacy groups, insurance providers, summer camp personnel and the National Hemophilia Foundation (NHF) as well as the New York State Department of Health and federal health agencies within the Department of Health and Human Services (Public Health Service, Centers for Disease Control and Prevention, Food and Drug Administration and National Institutes of Health) to improve the quality of life for individuals with bleeding disorders and their families.
Section 4.
The organization adopts the motto "A cure in our time".
Section 1.
The organization is dedicated to volunteer service of persons with hemophilia, von Willebrand disease (vWD) and other genetic bleeding disorders. The organization provides services and referrals to members of the community and encourages them to advocate for their own health care. Furthermore, the organization supports research and programs that will improve the quality of life for persons afflicted with genetic bleeding disorders and their associated complications.
Section 2.
To achieve the aforementioned, the organization is committed to:
Providing encouragement and assistance in the treatment and medical care of affected persons.
Assisting consumers and their family by providing programs regarding:
Peer-led education, outreach and support targeting consumers (patients), parents of affected children and the general public;
Advocacy and personal development; and Recreation.
Fundraising in support of organizational objectives.
Supporting research efforts.
Section 3.
The organization shall establish and maintain cooperative working relationships with all participants of the bleeding disorders health care model including, but not limited to, consumers and their families, health care providers and professionals, industry, advocacy groups, insurance providers, summer camp personnel and the National Hemophilia Foundation (NHF) as well as the New York State Department of Health and federal health agencies within the Department of Health and Human Services (Public Health Service, Centers for Disease Control and Prevention, Food and Drug Administration and National Institutes of Health) to improve the quality of life for individuals with bleeding disorders and their families.
Section 4.
The organization adopts the motto "A cure in our time".
