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Bleeding Disorders Association of Northeastern New York (BDANENY), Inc.
Membership -- "We are here for you"
WHO ARE WE?
Formerly known as the "Upper
Hudson Valley Chapter, Inc. of the
National Hemophilia Foundation, Inc.",
we are a
volunteer, not-for-profit
organization that serves the
congenital bleeding disorders
community within Northeastern
New York and adjacent areas.
OUR MISSION
Our mission is one of service and is
the same as the National Hemophilia
Foundation, Inc. "We are dedicated to the
cures of inherited bleeding disorders
and the prevention and treatment of
the complications through education,
advocacy, and research."
WHAT DO WE DO?
We advocate for the bleeding
disorders community by:
- Legislative lobbying on the national
(i.e., Ricky Ray Hemophilia Relief
Fund Act of 1998) and the state
level (Access to Justice legislation).
- Camperships
- Emergency funds
- Educational scholarships
- Community education at hospitals
and local rescue squads
- Fundraisers - 100% of all monies
raised go back to the community
- Monitoring of health issues - NHF,
CDC, FDA, NIH
- Community Activities
- Cabin Fever Party
- Annual Picnic
- Bowl-a-thon
- Golf Tournament
- River Cruises
- Educational Seminars/Newsletters
DON'T DELAY!!!!!!! Fill out the membership form on the back of
the newsletter and mail today, or call Kevin
Pelletier at: (518) 782-9787 or Debbie Huskie
at: (518) 658-2878.
No one will be denied membership due to
financial reasons.
Membership Policy Changes
In an effort to meet the needs of our community
and educate the general public, we have adopted a
membership policy that will serve to define rights,
privileges and responsibilities of individuals wanting
to participate in the governance of the Bleeding
Disorders Association of Northeastern New York
Incorporated. This policy takes effect immediately.
For clarification, questions or comments please
contact us at 518-782-9787.
Membership Policy
July 2006
PURPOSE:
To define who is a voting member of the Bleeding
Disorders Association of Northeastern New York
Inc. (BDANENY)
DEFINITION:
- Member(s): An individual and/or individuals
interested in participating in activities and/or programs
sponsored by the BDANENY.
Members will pay a set amount of money annually
to maintain their status and fulfill any and all requirements
stated in Article III of the BDANENY
By-Laws.
Member dues must be paid in full at least 30 days
prior to a general membership vote to be eligible to
cast a vote.
The cost of an annual membership shall be set by
the Board of Directors by April 1st on an annual
basis. Information will be disseminated to the public
by means available to the Association.
- Member-at-large: An individual and/or individuals
interested in participating in activities and/
or programs sponsored by the BDANENY.
Members-at-large have not fulfilled member status,
therefore are not current as dues paying members
and are not considered "in good standing" (Section
II, Article III, By-Laws) thus are not eligible
to participate in a general membership vote.
MEMBERSHIP
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