Bleeding Disorders Association
The BDANENY will be holding an Open House for our new office on April 17th from 12:00 P.M. - 4:00 P.M.view flyer [pdf] for more information.
Letter from the President
My Dear Friends:
The first decade of our new century has brought many changes for our community. A heightened awareness of our community needs and individual triumphs such as the signing of the Genetic Information Nondiscrimination Act of 2008 made the past ten years memorable. We, as a community along side many organizations with a vested interest in fair and equable treatment, fought for years for this act to become law and it has became a reality. The long days on Capitol Hill during Washington Days and the loud voices both oral and written proved to be a determining factor in our right to be treated fairly.
A new decade has dawned and we are now facing new challenges. Change is coming to our health care system. It has been noted by many organizations including the bleeding disorders organizations; the federal Health Care Bill has a serious flaw in the Senate version. This flaw would allow the insurance caps on resisting health care plans to remain imposed annually or yearly indefinitely. In addition, where caps are to be eliminated, the process would be phased in over years. This is unacceptable.
Again, it is time to stand up for our rights and the rights of future generations . Please take time to look at the Health Care Act, specifically insurance caps, and monitor organizations such as the National Hemophilia Foundation, Hemophilia Federation of America, and the National Organization of Rare Disorders for input into action. Contact your Senator and make your views known. Make this decade better that the prior ten years.
In closing, the Bleeding Disorders Association of Northeastern New Your Inc. will be here to assist you when needed and will be doing so from a new office located near Albany NY. This office will be opening shortly with limited hours. Please stay tuned for further information. Have a healthy and happy New Year. See you in Washington DC for Advocacy Days.
Stay Well,
Dave Huskie
BDA News
Newsletter of the BDANENY The opinions expressed in the newsletter are those of the authors alone and do not represent the opinion, policies or position of BDANENY, the Board of Directors or editorial staff. This material is provided for your general information only.
Published by the
P.O. Box 947, Rensselaer, NY 12144mkola6@hotmail.com www.bdaneny.org
Board of Directors
Co-Executive Directors
Newsletter Committee
