National Hemophilia Foundation, Inc.
Information pertaining to bleeding disorders (including hemophilia, von Willebrand Disease, Factor VII, and Factor XI deficiencies), legislative advocacy, research (gene therapy), conferences, etc. Including Steps for Living.
      
Hemophilia Federation of America 
Serves as a consumer advocate for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, and availability of the products the individuals of this community require.

All About Bleeding
Sponsored by Aventis Behring, it is a resource for the education, guidance and support of individuals who have or suspect they have von Willebrand disease. 
    
Canadian Hemophilia Society
Addresses the symptoms, diagnosis, and treatment of bleeding disorders including hemophilia, von Willebrand Disease, and other coagulation deficiencies including platelet function disorders. Excellent diagram depicting normal clot formation.
  
World  Federation of Hemophilia 
International organization dedicated to individuals with hemophilia worldwide.

Coalition for Hemophilia B, Inc.
The Coalition's focus is on improving the future for individuals with hemophilia B (Factor IX deficiency) through research, development of products, advocacy, and therapeutic treatment.

MyGirlsBlood
A social networking website for girls and women with bleeding disorders.