Legislative Advocacy
The Bleeding Disorders Association of Northeastern New York, Inc., formerly known as the Upper Hudson Valley Chapter of the National Hemophilia Foundation, Inc., is an organization dedicated to assisting people with various congenital bleeding disorders. One of the organization's main functions is legislative advocacy - ensuring that the rights of the bleeding disorders community are preserved at the local and national level.
The Association was, from the beginning, a strong supporter of the Ricky Ray Hemophilia Relief Fund Act of 1998. |
It was also instrumental in mobilizing the hemophilia community statewide resulting in passage of the "Access to Justice" legislation in New York State. Members of the organization advocated with individuals at the New York State Department of Health to develop and adopt an EMS Advisory for the Field Care of Individuals With Hemophilia. The organization will not hesitate to travel to the State Capitol (in Albany) or to Washington, D.C. to speak on behalf of the community. BDANENY will continue to advocate for the community regarding legislative, social, educational, and work-related issues as well as adequate insurance coverage. We encourage you to contact the Association so that we may assist in improving the quality of life for all New Yorkers with bleeding disorders. For information regarding U.S. Senators and Congressmen or State Senators and Representatives, please contact the Association Office at (518) 729-3577 or via e-mail memberservices@bdaneny.org. David Huskie President, BDANENY, Inc. |
One State, One Voice...
The New York State Bleeding Disorders Coalition is a partnership of not-for-profit organizations dedicated to public advocacy on behalf of people affected by bleeding disorders in New York State.
Our Coalition includes patient-consumer community organizations and hemophilia treatment centers serving New York State and several regional/national bleeding disorders education and advocacy organizations. Together, these organizations provide a broad range of medical care, education and support services to people affected by bleeding disorders |
For information or to contact your state, senate or house representatives please visit the following websites:
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